Am I really “still me”?

Lost is a place, right?

Are you there, too?

Hi, everyone! Welcome to “Lost”! It’s the new and improved place we used to call “Here”.

We don’t call it ‘Here” anymore because we’ve moved away from “Here”. “Here” is a place from afar. A place removed from what is relevant and current.

Destination: Unknown

I’m at home in “Lost”. And that’s sad.

Sad, but true.

“Lost” is both familiar and painful.

“Lost” is not that far away from “The Past” and just around the corner from “Hindsight”. It is 20/20, no?

And “Lost” is just before you get to “Far, Far Away”.

“Lost” is both confusing and exciting at the same time.

It is unknown and to some, might seem tragic.

To me, however, it’s not tragic.

It’s home.

I’m ready.

Ready to get to know my way around “Lost”. It seems that I may be here a while and I might as well get my bearings in this place.

Most of the people that live here are pretty nice. My neighbors keep to themselves, but smile and wave, if waved to.

And I do wave.

Every damn day.

The sights in this town are pretty nice, too. Old homes with character surrounded by new growth and change.

“Lost” has pretty great schools, too. With teachers that seem to actually care. Teachers that take the time to know their students by name and learning style.

The students seem to reciprocate with a sense of simple splendor. With a joy of learning! They converse in small groups out on the patio, while teachers smile their knowing smiles.

“Lost” even has a big chain Super Store!

Hooray, for “Lost”!

One day, we’ll catch up to the big city, but as of now, we’re pretty proud of our Super Store, thank you very much.

“Lost” is an easy commute to the finest jobs around. And, as luck may have it, my job, too. I love my drive to work from”Lost”. It’s a quiet and serene time that I can hear myself think. No one needs to be tended to and everyone can hear me.

I’ve found a nice niche in my little part of “Lost”. Albeit small, it’s mine.

I will miss “The Past”, but I’m not there anymore.

Now is the time to revel in the here and now and appreciate this thing we call life.

Do you appreciate life? Or do you, like I, take just about every minute for granted?

Geez, guys!

Let’s start the new year with a pact, OK?

Let’s be happy and content.

Whether we live in “Lost”, “Far, Far Away”, “Here”, “Now” or “In the Moment”.

Let us appreciate and savor every hour we get.

Every minute.

Every hour.

Every second.

Why?

Because before long we’ll be living in “Gone, but Not Forgotten” and I for one, want to put the final move off for as long as possible.

So, I will live in “Lost”.

I will love in “Lost”.

 I will be in “Lost”.

And for once, I’ll finally just be “me”…

Everything stays the same…

Everything stays the same.

Time is passing.

Leaves are falling.

Costumed children have tricked their treat and turkeys are starting to get scared.

Yet, everything stays the same.

Chris has had two, two month check up’s since I last wrote. To be perfectly honest. I didn’t know what to say.

Everything stays the same.

His doctors are happy and we’re excited! His tumor isn’t growing.

Yes, Chuck is still hanging out in his brain. but he’s not growing.

Every single time we hear this it gets more and more hopeful.

An “all clear” at the two moth appointment means more time.

Chris, however, is struggling.

You know those steps of the grieving process? There are five and he’s knocking back and forth between steps two and four.

Anger and depression.

One day he’s happy and I see a glimpse of the man I used to know.

One day, he’s so angry that I can’t get a word in edgewise because he’s so damn mad at me he can’t see straight.

And then there are the days that hurt the most. The days that I watch that strong, amazing man crumple at the feet of cancer.

He doesn’t move.

He doesn’t talk.

He doesn’t…

I long for the “good” days.

The days that he laughs and sings in that horrible baritone that I love.

The days that the kids can joke with him and he laughs back.

But, more often than not, he has an anger or depressive day.

Now, I’m not saying he’s ALWAYS like this. I’m just saying that it’s hard to have a good day when you’re trapped in a three way cycle of happy, mad and depression.

He’s still Chris.

With his hat on, you might not know that he has brain cancer. He still looks the same. Handsome as ever!

The only things you might notice is his aphasia.

He talks with effort.

To someone who didn’t know, it’d be like talking to someone who’s distracted. Like talking to someone who isn’t really listening.

Except, it’s the exact opposite of distraction.

It’s extreme concentration.

Words are difficult and following an entire conversation takes as much concentration as he can muster.

Which is a lot!

You might not know he has cancer.

But, you do.

Other than the cycle of grief, everything is ok.

Everything stays the same.

The kids are starting back to public school and I couldn’t be happier!

Not that I didn’t enjoy homeschool, but I just couldn’t do it.

I’m good at a lot of things. Great at some. But, homeschooling wasn’t my forte and I’m ok admitting that.

So, today Doodle two started at the elementary school near our new house and Doodle one starts Monday in middle.

Ugh!

Where has the time gone?!

I’m sure they’ll love being around more kids their own age and I’ll enjoy being with Chris ALONE on my days off.

What’s that like?

I forgot.

We moved to a new town and although it’s only a county away, I’m tee totally lost!

I’ll find my way.

Right now, I know where the schools are and the gas station.

It’s weird to be in a new town.

A fresh start.

Will we meet new friends?

Will we enjoy and become comfortable here?

I hope so! I certainly do.

That’s that!

Chris’s two month appointment went so well. Although, his brain is still swollen, it has gone down exponentially in the last few months.

Although weak, he has the ability to get stronger.

His will to fight is still there.

And, although dealing with the tremendous burden of grief, he is doing well.

The kids are starting school and they are nervously excited! They don’t seem as scared as they were before and my heart is happy to finally see them enjoy education again.

We are ok. We are together and enjoying what it feels like to be a normal family. We are happy with the notion that we get more time. We are starting to remember what it felt like before cancer entered our lives.

But, it did.

Everything stays the same.

She wakes…

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She wakes up everyday loathing the sun and wishing death upon the birds. How dare they be so happy and delighted to embrace the day? Don’t they feel like their tiny lives are insignificant, too? Don’t they feel like the sun burns their soul and causes the hollowness to reverberate an energy of hate?

She hates birds. They are everything she isn’t. Happy and content in their lives. They fly without abandon to wherever they want to go, at whatever time they want to go there and are only worried about how many worms they might find that day.

She is envious. She then gets mad at herself for being envious. Isn’t that a sin? Isn’t it also stupid to be jealous of a bird? A bird with hardly a brain and a lifespan of a month or so. Ah, that’s the ultimate reason, she thinks. The reason to hate them with all that she has and is. They live such a short period of time that they don’t have time for the what if’s and can’ts of life. They live such a short period of time that they don’t have time to build relationships with others that will inevitably hurt them. They will never know the pain of rejection, defeat or will they ever know the fear of someone or anyone not liking, or even worse, liking them.

She laughs. A defeated laugh of pure submission. Must she start the day? Yes. Must she place her feet on the floor and move through a day she can only hope will bring her more pleasure than pain? Yes. Then she laughs again. Right? What’s pleasure?

So goes her day. She smiles through the pain of a clinched chest and tight lungs. She laughs at other’s jokes that her conscious knows are funny, but her subconscious feels she has no right to laugh at. Laughter means happiness and happiness she doesn’t deserve.

Someone sees her glance down at the floor for second. Only a brief second where her heart is open and the pain slips out, but this time someone sees it. She says she’s tired. Makes the excuse that she didn’t sleep last night. Hell, she blames it on those damn birds! Anything to stop the questions. Anything to stop someone caring. Anything to alienate herself to the point of oblivion. Push them away, she thinks. They won’t understand. They will laugh at her and then they will leave her. They will leave her and hurt her and make her feel even more worthless than she already knows she is. So, she lies. Again.

Lying only makes her day worse. She constantly questions herself. Do they know? Will they hate me more than they already do? Is judgement just a word away?

Time to go home.

To her bed, she thinks. To her happy place. The place where she is simply a being. A being without a light. No light to turn out. No light for anyone to see. Goodnight, world. How she wishes this was the last time she’d ever have to say that…

Written with love for those who struggle. Written to help you know that you aren’t alone. There is always someone who understands and because we understand, we always care.